Sweet Nectar Society >> non-profit organization >> bio picture
  • Our Sweet Cause

    Sweet Nectar Society is an organization that brings together a network of professional photographers to capture the hope, courage, and strength of children undergoing treatment for serious illnesses, disabilities and injuries.

    A professional photography session is given to capture the beautiful spirit of each child. The gift of a bound coffee table book as well as the images from the session are presented to each family to ensure these precious memories are forever cherished. Each child's story is featured on our website to inspire viewers with the remarkable hope, courage, and strength shown by our "sweeties".

    The Sweet Nectar Society team has become a voice for childhood illness and disability by joining forces with other charitable organizations to raise awareness and encourage others to make a difference.

Teagan :: SMARD Type 1

Teagan Rose was born a healthy little girl on May 03, 2009 with no sign of disease other than slightly inverted feet. Weighing in at 8 pounds 11 ounces there was no thought that a genetic defect lay within. At approximately 8 months old she started having difficulty eating and at times full out refused. This was when she had her first visit to Valley Children’s Hospital of Central California. Soon after she had a surgical placation of her diaphragm and went home. Less than a month later she started refusing to eat again and her breathing became labored, thus she returned to the hospital. (Doctors where stumped and could not figure out what was really going on to cause her muscle degeneration. It would be six months before the answer was found.) She then, at 10 months, had a tracheotomy and was placed on permanent Ventilator support. Soon after that she also received a g-tube (button) for direct feeding to the stomach. She then remained at Children’s Hospital until she was 13 months old. Two weeks after she went home the diagnosis was delivered. SMARD type 1 a very rare genetic disorder from the muscular dystrophy family with approximately 60 known patients world wide. From the time she went home at 13 months she did very well and grew at a slow but steady pace but never gaining proper weight. She had never gotten the muscle strength to walk or crawl and was limited by her machines on movement. Then about a year ago she started very randomly getting sick to her stomach and was unable to keep her food down. She had been in and out of the hospital at least monthly until late June of last year at which point she had been a resident of Valley Children’s Hospital. Though the doctors had called in consultation they were unable to find a course of treatment that would be able to give her a longer life without causing more life threatening problems than she already faced. Teagan passed away October 5, 2013 at just 4 years old surrounded by her loving family.

 

For more information on Teagan’s condition click HERE to read up on SMARD Type 1.

Music provided by Song Freedom: Sara Masterson – Always the Beautiful

Photography by: Carrie Anne Miranda Photography

Christopher: Acute Lymphoblastic Leukemia

Christopher was diagnosed with acute lymphoblastic leukemia on July 9, 2012 after having pain in his back and legs for several weeks followed by fatigue and headaches.  His parents took him to the doctor and tests were done then they got the A.L.L. diagnosis.  Immediately after starting chemotherapy Christopher had an adverse reaction to one of the medications and developed a blood clot in his brain which was thankfully resolved.

We are happy to share that Christopher doing well in treatment and is currently in remission.  Christopher and his family recently enjoyed receiving star treatment during Chis’s Make-A-Wish trip to see a Dallas Cowboys game.  We wish Chris the very best!

Photography by Brittany Wilbur

Music licensed by SongFreedom “Ain’t No Mountain High Enough” by Marvin Gaye & Tammi Terreli

Heavyn :: Neuroblastoma

Heavyn was diagnosed with Stage 3 Neuroblastoma at the age of three.  She enjoys singing and dancing and everything girly.  Heavyn is currently undergoing vigorous treatments to control and battle her cancer.  Join us in wishing this little sweetie the very best!

 MORE INFO on Neuroblastoma.

Photography by Brittany Wilbur

Music licensed by SongFreedom  “Smile” by Joshua Logan and Kelsey

Dani & Brenda :: Cerebral Palsy, Developmental Delays, A.D.D./A.D.H.D.

Dani and Brenda are twins that were born at 24 weeks.  Brenda weighed 1.9oz. and Dani weighed 1.10oz. at birth.  Both girls were not expected to live.  Each of the girls face their struggles; using braces to help them walk, wears glasses, attends speech, physical and occupational therapy, and both girls attend a special needs school program.  Dani and Brenda both suffer from COPD which will keep them on steroids for life.

Dani and Brenda’s family participate in the March of Dimes and Hydrocephalus Association Walk to show their support for the girls. For more information on how you can participate please visit the March of Dimes or  Hydrocephalus Association’s websites.

photography by Brittany Wilbur and Erin Erin Pasillas
music licensed by SongFreedom.com ‘Best Friends’

Jayce :: Acute Myeloid Leukemia (AML)

Jayce was diagnosed with Acute Myeloid Leukemia at just 10 months. After several months of colds and breathing problems, and several different trips to the doctor and emergency rooms Jayce was referred to CHCC. They immediately found AML as the cause of his ailments. His treatments included 6 months of intense chemotherapy treatments and he is now at City of Hope and just received his bone marrow transplant.  He will be at the hospital for several months as his body adjusts to this procedure.

Photography by Carrie Anne Miranda
Music licensed by SongFreedom : Extreme, More Than Words

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