Sweet Nectar Society >> non-profit organization >> bio picture
  • Our Sweet Cause

    Sweet Nectar Society is an organization that brings together a network of professional photographers to capture the hope, courage, and strength of children undergoing treatment for serious illnesses, disabilities and injuries.

    A professional photography session is given to capture the beautiful spirit of each child. The gift of a bound coffee table book as well as the images from the session are presented to each family to ensure these precious memories are forever cherished. Each child's story is featured on our website to inspire viewers with the remarkable hope, courage, and strength shown by our "sweeties".

    The Sweet Nectar Society team has become a voice for childhood illness and disability by joining forces with other charitable organizations to raise awareness and encourage others to make a difference.

Charis : Down Syndrome, Strabismus

“Charis Soleil” means “gift of light”, a name purposefully chosen for this sweet girl.  After 7 years of trying to conceive and finally giving up on the idea of having a child the Crisco family received the best news, they were expecting a baby!  Charis was born on February 12, 2012 and diagnosed with Down Syndrome a day later.  Charis did not have many of the typical major health issues that children with down syndrome are born with, such as heart or gut defects.  Charis began early intervention and physical and speech therapy very young age.  Charis was diagnosed with strabismus at 6 months, which means her eyes cross, she has been doing vision therapy to strengthen her eyes in hopes of avoiding surgery.  Charis also has several food allergies to soy, dairy, wheat, and citrus, which makes selecting meals a challenge.  Despite any struggles, Charis’s parents believe she is the best thing that ever happened to their family.

For more information about down syndrome please visit DSACC.

photography by Erin Pasillas

music licensed by Audiojungle  So Alive- Tim McMorris

Ava :: Mitochondrial Dysautonomia and total Gastroparesis

After being sick with fevers for 10 months doctors discovered a mass on Ava’s heart- benign rhabdomyoma. This mass had begun to separate from her heart and with her next growth-spert doctors said it would have pulled from her heart and she would have died instantly.

Ava was recently diagnosed with Mitochondrial Dysautonomia. Mitochondrial disease consists of many symptoms that do not necessarily connect, such as, heat intolerance, erratic blood pressure, dizziness, nausea, intermittent gut dysfunction, and more. Dysautonomia describes an inability of the autonomic nervous system to regulate “typical” body functions, and is the cause of many of these troubling and confusing symptoms.

Ava’s currently at Children’s Hospital Central California adjusting to her recent J-tube surgery resulting from total gastroparesis, the muscles in her stomach stopped functioning. Before she can come home Ava must find a formula that works for her body and she her vitals must stabilize.
Having an actual diagnosis is a huge relief for this sweetie’s family- they have been fighting for the cause of Ava’s symptoms and searching for answers. We wish Ava the very best and pray for comfort during this time of adjustment.

Please give this sweetie some love by liking, sharing and sending good vibes her way- she is an absolute doll with such a gentle spirit!
(for more information please visit:http://www.mitoaction.org/)

music licensed by Audio Jungle: It’s a Beautiful Day

 

Cash :: Pineoblastoma

Sweet Cash will be remembered as a superhero to many, a friend, a brother, and a son.  Cash touched many lives during his 5 years he spent on this earth; his personality stole our hearts, his smile brightened our day, his strength inspired us.  Cash’s battle began with Pineoblastoma at the tender age of 4, when this rambunctious boy began getting headaches and had uncontrollable vomiting.  He was taken to the hospital where his family was told he had a virus and sent home-  this did not settle with his mom’s Super Mommy Instincts and she took him to Children’s Hospital for further testing.  An MRI showed a brain tumor and a parents worst fear settled in- CANCER.

Cash never complained about his situation, he took each treatment, test, and surgery as it came, and his braveness and tireless strength helped his lift his families spirits during this time.

After a long hard fight Cash’s cancer took over and Cash Shank passed away on February 6, 2014.  The Shank family and Cash will always be in our hearts.

Pineoblastoma is a rare malignant brain tumor which forms from the pineal gland (near the center of the head and brain). This tumor grows very quickly and is extremely invasive. For more information on Pineoblastoma or Childhood brain tumors please visit www.pineoblastoma.com.

cash

music licensed by SongFreedom.com, Michael McDurermott, ‘Where the River Meets the Sea’

Peyton :: hydrocephalus, cerebral palsy, seizures, and global delays


Peyton’s journey began at 23 weeks, he came into this world weighing 15oz. and is the only surviving triplet.  He suffered from fluid on the brain at birth causing extensive brain trauma. Peyton struggles include hydrocephalus, cerebral palsy, seizures, and global delays, due to the pressure.    Peyton has such determination and has worked hard to stand, crawl, and interact.  Despite the difficulties he endures, this little man knows no boundaries.

Peyton was recently admitted to Children’s Hospital Central California to the PICU for a very serious lung infection as well as an unknown infection that is being treated with a broad spectrum antibiotic.  He is in critical but stable condition at this time and is heavily sedated to ensure his comfort and healing.  This sweet little man is hooked up to many different machines that are monitoring his sedation level, brain activity, breathing, eating, fluids, etc.  Peyton is being closely watched by the amazing PICU doctors and nurses who recently  shared with his family they are seeing a slight improvement in the infection in his right lung.

Peyton’s parents are trying to stay positive and have faith that their strong little man will continue to fight this battle.  Along with Peyton, the Parmer family have two other children.  Their other son Jamie is currently undergoing treatment at CHCC for acute lymphoblastic leukemia and is also a Sweet Nectar Society Sweetie.  This family is enduring more than most face in a lifetime and they are in need of your love and support now more than ever.

Please join Sweet Nectar Society in encouraging this family by leaving them messages, comments or liking Peyton’s story.  If you would like to give to this family, please contact Sweet Nectar Society for more info.

 

“He has an incredible will and spirit despite his odds.  He has made some improvements, but concerning setbacks as well.  Doctors believe that he probably will be intubated for some time, but would like to get him off his current vent soon. Peyton is a fighter. I hold his hand almost all day long and he knows I’m there.” Rebecca Parmer (mom)
10001005_10201154807785939_815351420692056992_o*hospital photos curtsey of the Parmer family1909268_10201131295438145_6311459599308413340_o
photography by Brittany Wilbur
music licensed by SongFreedom:  Mat Kearney, Breathe In, Breathe Out

Rosie : Clear-Cell Sarcoma

Rosie is such a strong young woman who has endured so much in her life.  At age 17 Rosie was diagnosed with clear-cell sarcoma (a rare form of cancer that is seen in much older woman, never teenagers).  Rosie and her family did not settle when doctors told them there was nothing they could do for her.  In the past year she has endured aggressive treatments; chemo therapy, a full hysterectomy at the age of 17, and multiple surgeries.  As of today her diagnosis stands at clear cell carcinoma of the cervix (stage 4 cervical cancer) that has spread to her lungs.   Rosie has completed 12 rounds of chemotherapy and is now going through 30 rounds of radiation, which is done every day.  Rosie will be getting a full scan in May and  her family is praying to get good news.  An additional treatment plan will be determined if scans come back showing little or no improvement.

Rosie__8

photography by Brittany Wilbur
music licensed by SongFreedom: One Republic, Good Life

 

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