Sweet Nectar Society >> non-profit organization >> bio picture
  • Our Sweet Cause

    Sweet Nectar Society is an organization that brings together a network of professional photographers to capture the hope, courage, and strength of children undergoing treatment for serious illnesses, disabilities and injuries.

    A professional photography session is given to capture the beautiful spirit of each child. The gift of a bound coffee table book as well as the images from the session are presented to each family to ensure these precious memories are forever cherished. Each child's story is featured on our website to inspire viewers with the remarkable hope, courage, and strength shown by our "sweeties".

    The Sweet Nectar Society team has become a voice for childhood illness and disability by joining forces with other charitable organizations to raise awareness and encourage others to make a difference.

Marveya : Metastic Sarcoma and Adreno Cortical Carcinoma

Marveya was diagnosed with Metastic Sarcoma and Adreno Cortical Carcinoma on July 26, 2013.  Only 1 in 4 patients with this aggressive disease survive.  She set out on a journey to fight her cancer, accepting every obstacle with a positive outlook and determination to win the battle.  Even though the pain caused her to use a walker or wheelchair she continued to bravely push on each day.
With very heavy hearts we share Marveya’s story in memory of her sweet spirit, kind heart, and an outlook on life that was wise beyond her years.  Please take a moment to show love and support to her loved ones.

 

Photography by Brittany Wilbur

Music by licensed by SongFreedom.com | Hannah Christianson, A Hundred Hearts

Patricio :: Stage 4 Neuroblastoma

One year old Patricio (Patrick) was diagnosed with stage 4 Neuroblastoma back in September 2013. Since then he has undergone countless procedures to battle his diagnosis. Through it all Patrick continues to be a happy little guy and his family lovingly supports him each day. Patrick’s doctors have a plan for his treatment and high hopes for his prognosis. He is a very brave boy and though he has had many hospital stays and has multiple limitations due to his weakened immune system, yet he still manages to maintain the carefree attitude of a happy toddler boy.

 

Photography by: Brittany Wilbur

Music Licensed by- Audiojungle  Pink Zebra- Walk through Life

Sylvia :: Lupus

11 year old Sylvia was diagnosed with Lupus Sle and Nephritis and is currently undergoing chemo therapy to put it into remission. Sylvia is a remarkable young lady who has taken this diagnosis by the horns and created ways to help others in her situation. Sylvia has created a support group for other children with Lupus @lupuskids on Instagram. She has also started Protecting Our Butterflies, where she collects sunblock to give to there children fighting Lupus who have sensitivity to the sun.
Sylvia has personality that goes on for days and she had us all in tears with her jokes- one right after another. We are blown away by this girls enthusiasm for life and are honored to share Sylvia with SNS. 

 

Photography by: Brittany Wilbur

Music Licensed by Audiojungle: Tim McMorris- Simple Little Things of Life

Charis : Down Syndrome, Strabismus

“Charis Soleil” means “gift of light”, a name purposefully chosen for this sweet girl.  After 7 years of trying to conceive and finally giving up on the idea of having a child the Crisco family received the best news, they were expecting a baby!  Charis was born on February 12, 2012 and diagnosed with Down Syndrome a day later.  Charis did not have many of the typical major health issues that children with down syndrome are born with, such as heart or gut defects.  Charis began early intervention and physical and speech therapy very young age.  Charis was diagnosed with strabismus at 6 months, which means her eyes cross, she has been doing vision therapy to strengthen her eyes in hopes of avoiding surgery.  Charis also has several food allergies to soy, dairy, wheat, and citrus, which makes selecting meals a challenge.  Despite any struggles, Charis’s parents believe she is the best thing that ever happened to their family.

For more information about down syndrome please visit DSACC.

photography by Erin Pasillas

music licensed by Audiojungle  So Alive- Tim McMorris

Ava :: Mitochondrial Dysautonomia and total Gastroparesis

After being sick with fevers for 10 months doctors discovered a mass on Ava’s heart- benign rhabdomyoma. This mass had begun to separate from her heart and with her next growth-spert doctors said it would have pulled from her heart and she would have died instantly.

Ava was recently diagnosed with Mitochondrial Dysautonomia. Mitochondrial disease consists of many symptoms that do not necessarily connect, such as, heat intolerance, erratic blood pressure, dizziness, nausea, intermittent gut dysfunction, and more. Dysautonomia describes an inability of the autonomic nervous system to regulate “typical” body functions, and is the cause of many of these troubling and confusing symptoms.

Ava’s currently at Children’s Hospital Central California adjusting to her recent J-tube surgery resulting from total gastroparesis, the muscles in her stomach stopped functioning. Before she can come home Ava must find a formula that works for her body and she her vitals must stabilize.
Having an actual diagnosis is a huge relief for this sweetie’s family- they have been fighting for the cause of Ava’s symptoms and searching for answers. We wish Ava the very best and pray for comfort during this time of adjustment.

Please give this sweetie some love by liking, sharing and sending good vibes her way- she is an absolute doll with such a gentle spirit!
(for more information please visit:http://www.mitoaction.org/)

music licensed by Audio Jungle: It’s a Beautiful Day

 

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