After being sick with fevers for 10 months doctors discovered a mass on Ava’s heart- benign rhabdomyoma. This mass had begun to separate from her heart and with her next growth-spert doctors said it would have pulled from her heart and she would have died instantly.
Ava was recently diagnosed with Mitochondrial Dysautonomia. Mitochondrial disease consists of many symptoms that do not necessarily connect, such as, heat intolerance, erratic blood pressure, dizziness, nausea, intermittent gut dysfunction, and more. Dysautonomia describes an inability of the autonomic nervous system to regulate “typical” body functions, and is the cause of many of these troubling and confusing symptoms.
Ava’s currently at Children’s Hospital Central California adjusting to her recent J-tube surgery resulting from total gastroparesis, the muscles in her stomach stopped functioning. Before she can come home Ava must find a formula that works for her body and she her vitals must stabilize.
Having an actual diagnosis is a huge relief for this sweetie’s family- they have been fighting for the cause of Ava’s symptoms and searching for answers. We wish Ava the very best and pray for comfort during this time of adjustment.
Please give this sweetie some love by liking, sharing and sending good vibes her way- she is an absolute doll with such a gentle spirit!
(for more information please visit:http://www.mitoaction.org/)
music licensed by Audio Jungle: It’s a Beautiful Day